Bio: Cambridge postgrad figuring out some thinks. Blogging on disability, mental health & growing up little.

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2 thoughts on “About

  1. A few months back, I was invited to a family get together. Something that I often avoid as my folks and sisters are super religious and I’m not. There are a few reasons I’d go out of more than family duty. This was one of those occasions.

    My ‘Uncle’ John was over and I haven’t seen him in a very long time, maybe 15 years. He’s been one of my fathers closest friends since before I was born and he’s deaf. I now consider my self lucky as I grew up around deaf people. My signing has been reduced to spelling these days as I never meet deaf people in my work. (I work for a manufacturer of audio equipment).

    Anyway, John is and always has been a great communicator through lip-reading, signing and speech with just about anyone.

    Which leads me to you.

    After seeing John and signing very badly, I spent a bit of time on youtube finding signing clips and stumbled across you. It was the clip you did with your brother. It was amusing and a bit fun. It made me smile.

    At the time, I had wrongly assumed that your brother was deaf and you’d learnt to sign for him. Something that I did as a young boy to speak to John, although I realize now that a lot of the signs I used were kind of our own or just made up.

    I enjoyed your video so I watched a few more, including a clip on sign singing where you discouraged people to learn to sign songs for a party trick. Something which I can whole-hearted understand. It was only then I realized that that you had been deaf yourself and were in a wheel chair. I got curious about you and found your blog.

    Wow. I’m not much of a blog reader but the honesty, openness and passion with which you write spoke to me.

    Here was this bubbly young lady discussing very complex issues and sharing her own experiences to make a point but more importantly, to share your own experiences to help lend a different perspective.

    Your discussion on euthanasia was one of the first blogs I read and I was both surprised and moved with your arguments. It’s a complex subject and one that I have never really formulated an opinion on. I guess I always believed at some level that people should have the right to choose for themselves but your argument and own experiences set me thinking again.

    I then read the blog on chronic pain something which I can’t even begin to understand. I used to get pretty severe headaches that would last from when I woke to when I went to sleep again. But ultimately, I always knew that they would go and that was always dominant in my mind. Get through the day and go to bed.
    So I tried, unsuccessfully, to imagine what it would be like to wake up everyday feeling like that. But knowing to expect pain everyday, forever, is incomprehensible to me.

    I always thought I was lucky to grow up around deaf people, and I find it hard to think of it as a disability. Deaf people don’t really think it is, it’s just like being short or having black hair, particularly if you’re born with it. It’s hard to miss what you never had.

    You’ve made me think about how lucky I am how and more importantly, how lacking in understanding I am about pain, dealing with a disability and living a life so different to my own.

    You are an extraordinary young lady who speaks to people in way few people can.

    When your feeling low, remember that your willingness to share experiences are speaking to others and giving abled-bodied people like myself a much needed different perspective.

    Keep up the great work, I look forward to the next blog.

    Thank you for making me think.



    PS – sorry if I rabbled.

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